Like everyone living with kidney disease, I have ups and downs. I've been through some very difficult times, but thanks to my medical team, my family, The Kidney Foundation of Canada, and my own determination, I am much better today.
I was 11 years old when my legs and face became swollen and puffy. I was too young to know how serious these symptoms were. My parents, on the other hand, were very concerned.
My mother took me to the hospital to get checked out. After a series of tests and a biopsy, doctors had a clear picture of what was going on. I was diagnosed with C3 glomerulonephritis. It’s a rare chronic kidney disease that damages the kidney’s filter system. There is no cure for it, only treatments to slow its progression.
Since childhood, I’ve been on a series of medications like steroids and immunosuppressants. I’ve also experienced side effects. Swelling, dizziness, and muscle pain, to name a few. Bi-weekly medical appointments became routine when I was younger. I got used to blood tests, infusions, weigh-ins, and vaccinations.
The good news is, things have taken a turn for the better. In the past year, I was put on a new treatment plan. While previous treatments targeted inflammation, my new medication targets the source of inflammation. It inhibits the immune response that damages my kidneys. It’s working very well. I find it amazing that in my lifetime, I’ve seen treatments transform to better address my kidney disease. I’m thankful to The Kidney Foundation and its supporters for constantly funding research to uncover new treatments. It’s because of their dedication that my medical appointments are now less frequent. While I used to fear I would need a kidney transplant at any moment, that fear is now receding. The word “cure” is even coming up in my discussions with my doctor.
Ten years ago, my kidney disease had me exhausted and constantly battling side effects. Now, it is considered to be in sustained partial remission. I have the energy to be active, social, and to explore. I’m even training for a half-marathon!
I am eternally grateful for the support I’ve received. My story is proof that research pays off and that progress is possible for people living with kidney disease. But there are still so many forms of kidney disease with limited treatment options. That’s why continued funding for research is essential. And helping people living with kidney disease through support groups, trusted information, and health advocacy is just as important.
