Acceptability and Usability of the Getontrak Web-Based Self-Management Guide for Kidney Transplant Recipients
Co-Applicant(s): Deborah Da Costa, Lloyd Mangahas, Nicolas Fernandez, Ruth Sapir-Pichhadze
Lay Abstract
Background: After a kidney transplant, patients need to make lifestyle adjustments to stay healthy and prevent complications. Many transplant recipients feel uncertain about managing their health on their own, which can make it hard for them to keep up with necessary self-care practices. No self-management tools existed to support the unique needs of kidney transplant patients, so our team designed and created an online self-management guide called GETONTRAK.
Purpose: We want to find out if the GETONTRAK guide is useful and easy to use for people who have received a kidney transplant. By understanding how well this guide works for transplant recipients, we hope to improve its design and make sure it truly meets their needs. Our ultimate goal is to empower kidney transplant patients to feel confident and supported in managing their health.
Method: Our study will involve kidney transplant recipients who will be invited to use the online GETONTRAK guide for 2 weeks. We will gather their feedback through questionnaires and interviews to learn about their experiences using the website, including any difficulties they faced, what they found helpful, and whether the content is useful in helping them better manage their health.
Anticipated Outcomes: We expect that participants will find the GETONTRAK guide helpful for managing their health after a transplant. Their feedback will provide important insights into how the guide can be refined to better serve future transplant recipients. Patient Engagement: In our study, kidney transplant recipients will be active partners. They will help us review the survey questions and interview guides to make sure they are clear and meaningful. Their involvement will ensure that the study reflects the real-life needs and concerns of transplant patients.
Relevance to Patients/Community: Our research will make a difference for kidney transplant patients by providing them with a tool that is practical, user-friendly, and tailored to their specific needs. By improving the GETONTRAK guide, we aim to give patients the confidence and knowledge they need to take charge of their health after transplant surgery.
Conclusion: This study will help us understand how effective the GETONTRAK guide is in supporting kidney transplant recipients. By ensuring this resource is valuable and easy to use, we hope to improve the lives of kidney transplant patients and their families.
