Supported Research

Lay Abstract

My research studies how to help people with kidney failure participate in life activities that are important to them. People with kidney failure are living longer than ever before because of treatments like dialysis. However, they often find it hard to complete daily tasks like laundry, shopping, or working, while also keeping up with regular dialysis treatments. It can be also be hard for them to accomplish activities they enjoy, like going for a walk or getting together with friends. While we know that kidney disease can cause problems with daily living, we don't have a clear sense of why people with kidney disease are unable to do activities they want to do, or how we can best support them. There are many reasons why people with kidney disease might find daily activities hard – for example, kidney disease can cause tiredness, cramps, weakness, or difficulty concentrating. Dialysis is also an exhausting treatment that can drain people's energy. It is important for us to figure out exactly why kidney disease makes daily activities more difficult, so we can find treatments that will help people do the things they love. My research will study why people with kidney failure are not able to engage in daily activities they want to do, and what can be done to help them in this area of their lives. In one study, I will see whether a program that teaches people how to manage their fatigue throughout the day helps them to accomplish life goals, like cooking for their family or going on outings. People with kidney disease also sometimes have more difficulty thinking clearly. In another study, I will look at whether this prevents them from doing things like going out in the community, grocery shopping, or managing their medications. Other studies will look at whether spending time at the dialysis unit might play a role in making people sad or depressed, and, whether there is more we could be doing to support family and friends who care for people on peritoneal dialysis. Patients will be involved in all parts of my research. All of the studies I plan to do will involve at least one patient partner in the research process, and patients will be invited to contribute to the design and discussion of all projects and results.