Participate in a Study

Current opportunities

• Experiences of Women with Depression and Kidney Failure Receiving Hemodialysis in an Incentre Urban Hospital in Ontario

  

  Overview

  Nearly 40% of people with late-stage kidney disease or on dialysis experience depression. This is almost 10 times higher than the general population where the rate of depression is around 4.4%. Moreover, almost 40% of dialysis patients are women and evidence suggests women may experience the symptoms of depression more strongly than men.

  Depression among kidney disease patients can have numerous effects on their healthcare and quality of life, including potential increases in the risk of hospitalization, poor compliance with treatment, poor nutrition, and more. Yet, the effects and impact of depression among women receiving dialysis is widely understudied.

  Understanding the impact and differences of depression on women undergoing dialysis can lead to the development of new tools and strategies to improve quality of life of these patients.

  Researchers from the University of Alberta are aiming to address this knowledge gap by interviewing dialysis patients who are women to understand their lived experience with depression and kidney disease. Eligible individuals will participate in one 45-60-minute structured interview with a member of the study team via online video conferencing platforms.

  This study is available in English only and will close on March 1, 2025.

  Eligibility

  To be eligible to participate in this study, you must:

  • Identify as a women
  • Be experiencing depression or depressive symptoms
  • Be receiving in-centre hemodialysis
  • Be located in Ontario

  Study Contact

  If you would like to participate in this study or have any questions, please contact Primrose Mharapara at [email protected] or 647-919-2476.

  This study was approved by the University of Alberta’s Research Ethics Board: Pro00134670

• Share Your Story: Help Clinicians Understand T2D and CKD

  Do you have type 2 diabetes and chronic kidney disease (CKD) or maybe you know someone who does? If so, you can help Springer Healthcare build a patient-focused educational activity that emphasizes the importance of understanding the patient perspective and teamwork among healthcare professionals.

  If you decide to participate, you will get the chance to be part of a virtual video podcast and share your views with Professor Tina Visbol. You will also discuss shared decision-making and communication related to the treatment journey.

  The whole process will take around 3.5-4 hours, and you'll receive an honorarium for your time.

  Your valuable insights will help healthcare professionals from various disciplines, including primary care physicians, nephrologists, endocrinologists, cardiologists, and diabetologists to improve their treatment pathways.

  Please note that this study is only available in English.

  Should you have any questions, please contact:

  Leah Bundy

  [email protected]

• Food insecurity and Diet Quality in Adults with Chronic Kidney Disease (CKD)

  As food costs rise in Canada, many turn to cheaper and more readily available processed foods, which can be high in salt and sugar and increase the risk of chronic diseases. Researchers at the University of Alberta are studying the impact of food insecurity on the diets and kidney health of Canadian adults with CKD.

  Your participation will help inform interventions and policies to prevent food insecurity and its health implications in this population.

  To be eligible, you must:

  • Be between 18-80 years old
  • Be able to provide consent
  • Have a diagnosis of stage 1-5 chronic kidney disease
  • Be able to communicate in English
  • Not be on dialysis

  Participants will be asked to complete a 3-day food record, collect receipts for two weeks’ worth of food, answer questionnaires about their food habits and quality of life, and attend online interviews with the study investigators. The total time required is estimated to be 3 hours.

  This study is only available in English and will continue until December 2025. It has received approval through the Health Research Ethics Board – Health Panel, University of Alberta (Pro00132239).

  Should you have any questions, please contact:

  Dr. Diana Mager PhD RD
  780-492-7687
  [email protected]

• Become a Member of the Home First Dialysis Project Study Team

  If you or someone you know has experience with home dialysis OR have advanced chronic kidney disease (stage 4 or 5) and are not on dialysis, you are invited to be a patient partner in an ongoing study at the University of Manitoba.

  The Home First project aims to provide comprehensive support and education to CKD patients, with dedicated experts by their side to guide them through their healthcare journey. The goal of the program is to offer everyone the opportunity to experience home dialysis and help address barriers that may exist.

  As a patient partner you would be considered a member of the project research team. Your contributions may include reviewing educational material, sharing your experience with home dialysis, or helping guide the project.

  Patient partners must be able to speak English and be a resident of Manitoba.

  This study will be ongoing until 2027.

  Should you have any questions, please contact the research team:

  Rachel Girimonte
  1(204)-632-3667
  [email protected]

  This study received approval from the Health Research Ethics Board (HREB), study number H2023: 359.

• Studying the life stories of families of immunocompromised (IC) children during the COVID-19 pandemic

  At the University of Manitoba, researchers are studying the lived experience of families of immunocompromised (IC) children during the COVID-19 pandemic. Their goal is to identify meaningful insights to help such families overcome challenges throughout the current pandemic and during future crises.
  
  If you have an IC child under 18, you are eligible to participate in this study. Participation will involve:

  1. An individual interview with each family member (who is interested)
  2. An individual or family group photograph activity followed by an interview about the photos
  3. Optional: Creation of a short video followed by a discussion of it in another interview

  You can organize each part of this study at your own convenience. You will also receive an honorarium for taking part in the research.
  
  This study is led by Dr. Roberta Woodgate and is ongoing until May 2025. Translators will be available for study participants.

  Should you have any questions, please contact:  
   

  Dr. Roberta Woodgate
  [email protected] 
  (204) 480-1051

• VIRTUAL PATIENT ADVOCACY VOLUNTEER OPPORTUNITY
  MEDSKL is a free, open-access medical education platform that is recruiting patient volunteers to share their story with medical students through a live webinar series called "Patient Perspectives". This is an opportunity for individuals in The Kidney Foundation community to teach future physicians about kidney disease from the perspective of their lived experience. The webinar will be 1 hour in length and hosted on Zoom on a weeknight evening of your choice. If you are interested in this opportunity, please sign-up using the online form or contact MEDSKL at www.medskl.com/contact.
• Exploring Patients Knowledge of Precision Medicine & Biobanking
  Are you at least 18 years old? Have you been diagnosed with chronic kidney disease? 
  
  Researchers at the University of Calgary are exploring patients’ knowledge, perceptions and experiences of precision medicine and biobanking. The findings of this research may help to enhance patient engagement and awareness of precision medicine and biobanking research
  
  Researchers are looking for patients with chronic kidney disease who are willing to be interviewed about these topics. The interviews will be conducted either by phone or by Skype/Zoom/Google Hangouts and will take approximately 30-45 minutes. 
  
  In appreciation of participant’s time, a $25 gift card will be provided. Please note that your views will be confidential and no personally identifiable information will be associated with responses.
  
  If you are willing to participate in this study, please contact:
  Mohammad Haque
  Masters Student at University of Calgary 
  Email: [email protected]
  Phone: 403-835-7225
• TESTING Study Seeking Patients with IgA Nephropathy
  IgA nephropathy is one of the most common causes of kidney disease, especially in younger adults. The mainstay of therapy involves using blood pressure medications to lower both blood pressure and decrease proteinuria. In those wherein proteinuria cannot be lowered to less than a gram, progression to end stage kidney disease occurs over a number of years. There is information to suggest that corticosteroids (medications that suppress the immune system) may be effective at preventing kidney failure in patients with IgA nephropathy. The TESTING Study is an international study being conducted to clearly understand what benefits and risks are associated with corticosteroids in IgA nephropathy, using a corticosteroid called methylprednisolone.
  
  Over the next year we are looking for 50 patients over the age of 18 with IgA nephropathy to participate in this study at 6 hospitals across Canada. If you are interested in learning more about the study, please contact a research coordinator at one of the hospitals below:
  
  St. Paul’s Hospital/Vancouver General Hospital (Vancouver, BC): Zainab Sheriff [email protected] or 604-682-2344 x64744
  
  University of Calgary, Foothills Medical Center (Calgary, Alberta): Sheila Li [email protected] or 403-210-7431
  
  University of Alberta Hospital (Edmonton, Alberta): Nancy Ruholl [email protected] or 780-492-3887
  
  Sunnybrook Health Sciences Centre (Toronto, Ontario): Tatjana Sukovic [email protected] or 416-480-6100 x 3247
  
  London Health Sciences Centre (London, Ontario): Kerri Gallo [email protected] or 519-685-8500 x52212
  
  Hôpital Maisonneuve Rosemont (Montréal, Quebec): Martine Comeau [email protected] or 514-252-3400 x4647