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When Dan’s kidney function started to fall below 20 per cent, he and his wife Joan grew very concerned. The Niagara, Ontario couple looked for ways to learn more about renal diets and how to manage Dan’s condition. Last spring, they began taking part in Kidney Connect peer support meetings, organized by the Kidney Foundation. Once a month they log on to an online session and join a virtual group discussion.

“I think it is good for people with any stage of kidney disease to meet with others going through a similar experience,” Dan says, noting he is especially happy that his wife can also take part. “Some people at the meetings have kidney transplants, while others are on dialysis. It is not an intimidating group, and no one is put on the spot. It is very upbeat and positive.”    

Dan and Joan’s group is one of several virtual peer support meetings taking place across the province. Everyone is welcome, and you can connect either by phone or by video conference. There were also in-person groups, but they are now on hold due to the Covid-19 pandemic. At a time when people are living with more isolation and anxiety, the online groups offer both emotional support and practical advice.

Michele is 30 years old, and lives in Toronto. She joined a virtual peer support group after being hospitalized with end-stage kidney disease. The diagnosis “came out of nowhere”, and the meetings have helped her manage the transition to dialysis. 

“It is good to hear other people’s stories and know you are not alone,” she says. “It is a diverse group, with some younger members and some older. Some people are there to learn more about options for dialysis and transplants. Others are looking to better understand how to continue working while on dialysis.” 

Group sessions are just one place to find help and support. The Kidney Foundation also offers one-on-one phone sessions with trained volunteers. For those who prefer online forums, there is KidneyConnect.ca. The site provides a safe and respectful place to share experiences and learn more about ways to manage renal issues.  

No matter where you are on your journey with kidney disease, help is available. Call 1-866-390-7337 or email our Programs team for information about group meeting registration or to arrange a peer support connection.