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Promoting the patient voice: understanding the implementation of patient-reported outcome measures i

Lay Summary Persons with kidney failure receiving hemodialysis commonly report clusters of symptoms (such as fatigue and itching) and poor quality of life. Patient-reported outcome measures, or PROMs, are questionnaires used to assess individuals’ perspectives on their sympt...

The problem of non-clear cell renal cell carcinoma; tailoring the treatment to the biology

Lay Abstract Kidney cancer is among the topmost common 10 cancers worldwide. Approximately 85,000 people would be diagnosed with kidney cancer in North America in a year, and 1 of 4 of these would die of the cancer. Patients with kidney disease are more 5-15 times more pron...

KRESCENT Alumni Involved in the Creation of New Clinical Risk Prediction Tool for Kidney Disease

As we celebrate Kidney Health Month, a groundbreaking advancement in chronic kidney disease screening and management developed by a Canadian researcher has been included as a validated model in the Improving Global Outcomes (KDIGO) Clinical practice guideline for the Evaluat...

Advocacy: The Patient Perspective

People with chronic kidney disease face many challenges. Treatment options need to be considered and chosen, employment may need to be paused or stopped, and dealing with the everyday issues that arise are just some of the realities that impact the life of a kidney patient. P...

Reena’s Story

Back when I was 25, I had some pain in my big toe that wouldn’t let up. At that time, I was an aerobics teacher and personal trainer and this pain was greatly affecting my ability to do my job. I went off to the doctor who told me I had gout. “Gout? Isn’t that something old me...

Joe's Story

As a young child, I often experienced terrible bouts of joint pain, which would lay me up for days at a time. I was also diagnosed with a blood disorder that causes bruising. But I embraced an active lifestyle, working at a physically demanding job and enjoying simple pleasure...

Reena’s Story

Back when I was 25, I had some pain in my big toe that wouldn’t let up. At that time, I was an aerobics teacher and personal trainer and this pain was greatly affecting my ability to do my job. I went off to the doctor who told me I had gout. “Gout? Isn’t that something old me...

Kyle’s Story

My name is Kyle and I have an identical twin brother, Craig, we both have chronic kidney disease (CKD). We were diagnosed at thirteen years of age when our family doctor noticed some concerning results in our blood work.  More tests were done, and the diagnosis of kidney dis...

Can-SOLVE CKD

Canadians Seeking Solutions and Innovations to Overcome Chronic Kidney Disease (Can-SOLVE CKD) is a unique patient-oriented kidney research network that puts patients at the heart of everything that is done. The goal of the network is to improve the quality of care of those wi...

Canadians Need to Know More About Kidney Health

March is Kidney Health Month A recent poll conducted by Ipsos on behalf of The Kidney Foundation of Canada found that the majority of Canadians – 59% – admit they don’t know anything about kidney disease and 48% of people don’t know if they themselves may be at risk 1 . Fur...

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