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The Kidney Foundation is committed to supporting the mental health needs of patients through the Kidney Connect Peer Support program. A diagnosis of kidney disease can bring a host of physical and psychological challenges. Medical professionals play an important role to provide treatment information and answer questions about the disease and treatment, but they don’t have the lived experience, and that’s where peer support – talking with someone who has a shared lived experience – can make all the difference.   

Over 20 support groups are held each month to provide support to patients and caregivers, too. Many groups are open to everyone, but The Kidney Foundation also offers specialty or niche groups to provide a unique experience for group participants to connect with others who face a similar diagnosis.  A group supporting people living with polycystic kidney disease (PKD) is one such group.  

PKD is a genetic disease that causes fluid-filled cysts to grow on kidneys and other organs and impacts kidney function. For some, PKD can be managed for decades without causing serious illness. For others, it leads to physical pain, discomfort, and kidney failure.  

“The PKD group provides a space for dialogue, unique to people living with polycystic kidney disease”, said Craig Lindsay, Director of Programs & Public Policy at The Kidney Foundation’s Ontario Branch. “We want to ensure we reach a broad community, so we’re pleased to announce a collaboration with the PKD Foundation of Canada, to further enhance the Living with PKD support group.  Connecting with others who face the same journey is a great way to share experiences and learn how to best manage what can be a very challenging condition.”     

“Supporting the mental health of those affected by polycystic kidney disease is crucial,” explained Kathleen Barnard, Executive Director, PKD Foundation of Canada. “PKD can bring significant emotional and psychological challenges, including anxiety about disease progression and chronic pain. Many patients face social isolation, depression, and fear about future health outcomes. The emotional strain of managing symptoms, coping with dietary restrictions, and dealing with medication side effects can be overwhelming. 

“That’s why we're thrilled to partner with The Kidney Foundation of Canada to provide monthly peer support meetings for the PKD community. Together we can improve the quality of life for PKD patients and caregivers, helping them navigate their journey with resilience and hope,” Barnard added. 

Kidney Connect Peer Support is a free service and group support is delivered online so that it is accessible to everyone coast to coast.  

Group sessions are just one place to find help and support. The Kidney Foundation also offers one-on-one phone sessions with trained volunteers.  Caregivers can also receive support  

No matter where you are on your journey with kidney disease, help is available. Call 1-866-390-7337 or email our Programs team for information about group meeting registration.  

The next PKD Support Group is scheduled for July 11, 2024, at 6:00p.m.