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Manuel and Suzanna are both kidney transplant recipients and employed at the Foundation.

Would you like to share your views to help improve programs and services for patients, or help researchers gain a better understanding of the challenges of living with kidney disease? You are at the right place! Browse down below to see current opportunities.

Current opportunities

  • Impact of the COVID-19 pandemic on immunosuppressed graft recipients and their relatives

    The CHUM Research Centre, in collaboration with the Canadian Donation and Transplantation Research Program (CDTRP), are currently recruiting transplant recipients and their family members interested in contributing, as a volunteer research participant, to a study aimed at understanding the Impact of the COVID-19 pandemic on immunosuppressed graft recipients and their relatives. 

    More specifically, this project aims to capture the modification of lifestyle habits, stress, anxiety levels and coping strategies of immunosuppressed graft recipients, their families and their relatives in the specific context of the containment associated with COVID-19 (objective 1). They also wish to study the impact of pet ownership on the stress experienced by this population and the benefits that pets can bring to organ recipients and their families (objective 2). 

    A Virtual Zoom Information Session is planned on Wednesday April 8th 2020 at 1pm PT / 2pm MT / 3pm CT / 4pm ET / 5pm AT / 5.30pm NT.  Please contact them by email to receive the information to connect to the information session or to get more information if you are not available to join the session. Please note that reaching out or participating to the Information Session does not oblige you to join as a research participant in the project.  


    The research team:  
    Mélanie Dieudé (Ph.D.), Isabelle Doré (Ph.D.), Sylvain Bédard (Patient), Co-Investigators and Stéphanie Larivière, Project manager 

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  • Seeking Kidney Recipients Who Participated in Canada’s Kidney Paired Donation Program
    Are you a kidney recipient and have you participated in Canada’s kidney paired donation program? Your personal experience, put in your own words, is of great interest to us!

    Despite the novelty of paired donation programs, few studies focus on kidney transplant recipients’ experience in this unique context. This study aims to help better understand patients’ needs in the context of Kidney Paired Donation. If you’re interested to share your experience as a kidney transplant recipient who participated in Canada’s Kidney Paired Donation program, or would like more information, contact:

    Sophia Bourkas
    Doctoral student at University of Montreal

    *Note that reaching out for more info does not in any way oblige you to participate!  
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  • Feedback sought for the development of a wearable dialysis machine
    Qidni Labs, a start-up company from Kitchener, Ontario, is developing a wearable dialysis machine. They have created a questionnaire to better understand the needs and desires of dialysis patients as they move forward in developing and actively improving their wearable device. Qidni Labs would greatly appreciate your time in giving them your input through this survey. Click the link to go to the survey:

    Your feedback will help them make the change you want to see in the future of kidney and dialysis care. You can learn more about them on their website
  • TESTING Study Seeking Patients with IgA Nephropathy
    IgA nephropathy is one of the most common causes of kidney disease, especially in younger adults. The mainstay of therapy involves using blood pressure medications to lower both blood pressure and decrease proteinuria. In those wherein proteinuria cannot be lowered to less than a gram, progression to end stage kidney disease occurs over a number of years. There is information to suggest that corticosteroids (medications that suppress the immune system) may be effective at preventing kidney failure in patients with IgA nephropathy. The TESTING Study is an international study being conducted to clearly understand what benefits and risks are associated with corticosteroids in IgA nephropathy, using a corticosteroid called methylprednisolone.

    Over the next year we are looking for 50 patients over the age of 18 with IgA nephropathy to participate in this study at 6 hospitals across Canada. If you are interested in learning more about the study, please contact a research coordinator at one of the hospitals below:

    St. Paul’s Hospital/Vancouver General Hospital (Vancouver, BC): Zainab Sheriff or 604-682-2344 x64744

    University of Calgary, Foothills Medical Center (Calgary, Alberta): Sheila Li or 403-210-7431

    University of Alberta Hospital (Edmonton, Alberta): Nancy Ruholl or 780-492-3887

    Sunnybrook Health Sciences Centre (Toronto, Ontario): Tatjana Sukovic or 416-480-6100 x 3247

    London Health Sciences Centre (London, Ontario): Kerri Gallo or 519-685-8500 x52212

    Hôpital Maisonneuve Rosemont (Montréal, Quebec): Martine Comeau or 514-252-3400 x4647
  • Join the international SONG-PKD Delphi Panel!
    Are you a patient, caregiver or health professional? Join the international Standardised Outcomes in Nephrology Initiative – Polycystic Kidney Disease (SONG-PKD) Delphi panel and have your say on what outcomes should be included in research in autosomal dominant PKD.

    In Round 1, you will be asked to rate the importance of 41 outcomes. This will be followed by a second round, in which you will see a summary of the group results. Learn more.
  • What Do You Think About Exercise During Hemodialysis?
    Are you at least 18 years old and do you live in Ontario? Are you currently on hemodialysis? If so, The Ottawa Hospital Research Institute wants to know what you think about exercise during hemodialysis.

    The Ottawa Hospital Research Institute is planning an exercise program for people on hemodialysis who are cleared to exercise by their kidney doctor. It wants to hear from you about what you think about this idea so that it can plan its program with your point of view in mind.

    If you, or someone you know, is currently on hemodialysis and can spare a few minutes for a short chat (45 minutes) by phone or in person, The Ottawa Hospital Research Institute would be delighted to hear your views – whether or not you are interested in exercising during dialysis!

    In appreciation for your time, The Ottawa Hospital Research Institute can offer you a $20 gift card.  Please note that your views will be confidential and that taking part (or not) will not affect your care in any way.

    To find out more about this study, please contact Gisell Castillo by email or by phone 613-737-8899 ext. 71578.