Skip to main content

Manuel and Suzanna are both kidney transplant recipients and employed at the Foundation.

Would you like to share your views to help improve programs and services for patients, or help researchers gain a better understanding of the challenges of living with kidney disease? You are at the right place! Browse down below to see current opportunities.


Current opportunities

  • Be the first to test a novel website
    The University of Calgary is seeking volunteers to test a novel website to support adults with chronic kidney disease (CKD).  The website provides information on topics relevant to managing CKD; the ability to create a customized food list and a tailored question list to bring to your health care provider; as well as resources to support you.

    Who can participate? You are eligible if you:
    • Have chronic kidney disease and not on dialysis
    • Are 18 years of age or older
    • Can read and write English
    • Live in Canada
    • Have access to a device with an internet connection
    What does the study involve?
    • Use the website for 8 weeks as you desire
    • Complete brief online questionnaires prior to and after using the website
    • Partake in a 30-minute telephone interview to tell us about your experience with using the website
    If you are interested in joining the study or need more information please contact the University of Calgary Project Coordinator, Michelle Smekal at msmekal@ucalgary.ca
     
  • Exploring Patients Knowledge of Precision Medicine & Biobanking
    Are you at least 18 years old? Have you been diagnosed with chronic kidney disease? 

    Researchers at the University of Calgary are exploring patients’ knowledge, perceptions and experiences of precision medicine and biobanking. The findings of this research may help to enhance patient engagement and awareness of precision medicine and biobanking research

    Researchers are looking for patients with chronic kidney disease who are willing to be interviewed about these topics. The interviews will be conducted either by phone or by Skype/Zoom/Google Hangouts and will take approximately 30-45 minutes. 

    In appreciation of participant’s time, a $25 gift card will be provided. Please note that your views will be confidential and no personally identifiable information will be associated with responses.

    If you are willing to participate in this study, please contact:
    Mohammad Haque
    Masters Student at University of Calgary 
    Email: mohammad.haque@ucalgary.ca
    Phone: 403-835-7225
  • Seeking Patients with Primary Membranous Nephropathy (PMN)
    The Canadian Agency for Drugs and Technologies in Health (CADTH) is starting a Health Technology Assessment project for rituximab for primary membranous nephropathy. The objective of this project is to review evidence on the use of rituximab to determine its place in therapy and its cost-effectiveness compared to the current standard of care, which involves cyclophosphamide and calcineurin inhibitors. 
     
    As part of this project, they would like to learn from one or two individuals with primary membranous nephropathy (PMN), to better understand the challenges of the disease and hear their first-hand experiences with rituximab. Participants will take part in a confidential discussion via telephone. They will pay an honorarium to the individuals involved.  
     
    The ideal person(s) would: 
    • Have PMN;
    • Have personal experience with taking rituximab as a treatment for PMN; 
    • Be comfortable talking about their experiences via telephone with CADTH.
    Anyone who is interested should contact julie.boucher@cadth.ca
  • Impact of the COVID-19 pandemic on immunosuppressed graft recipients and their relatives

    The CHUM Research Centre, in collaboration with the Canadian Donation and Transplantation Research Program (CDTRP), are currently recruiting transplant recipients and their family members interested in contributing, as a volunteer research participant, to a study aimed at understanding the Impact of the COVID-19 pandemic on immunosuppressed graft recipients and their relatives. 

    More specifically, this project aims to capture the modification of lifestyle habits, stress, anxiety levels and coping strategies of immunosuppressed graft recipients, their families and their relatives in the specific context of the containment associated with COVID-19 (objective 1). They also wish to study the impact of pet ownership on the stress experienced by this population and the benefits that pets can bring to organ recipients and their families (objective 2). 

    Please note that reaching out or participating to the Information Session does not oblige you to join as a research participant in the project.  

    https://cdtrp.ca/en/seeking-for-transplant-recipients-and-their-family-members-for-a-study-on-the-impact-of-covid-19/

    Contact: stephanie.lariviere-beaudoin.chum@ssss.gouv.qc.ca 

    The research team:  
    Mélanie Dieudé (Ph.D.), Isabelle Doré (Ph.D.), Sylvain Bédard (Patient), Co-Investigators and Stéphanie Larivière, Project manager 

    logo-CHUM.png        logo_CDTRP.png
  • Seeking Kidney Transplant Recipients Across Canada
    Are you a kidney recipient residing in Canada? Your personal experience is of great interest to us!

    There aren’t enough studies that focus on kidney transplant recipients’ experience from their own point of view. This study aims to help better understand kidney recipients’ needs across all contexts of donation (living donation, deceased donation, and donation via Canada’s Kidney Paired Donation program). 

    Participating involves one Skype interview. The interview is also a moment where you will be free to share any concerns related to the current COVID-19 pandemic as well, should you wish to.

     If you are interested in sharing your experience or would like more information, contact:

    Sophia Bourkas
    Doctoral student at University of Montreal
    sophia.bourkas@umontreal.ca

    *Note that reaching out for more info does not in any way oblige you to participate!  
    UoMtl-logo.png             QuebecGov_FRSC-logo.png
  • Feedback sought for the development of a wearable dialysis machine
    Qidni Labs, a start-up company from Kitchener, Ontario, is developing a wearable dialysis machine. They have created a questionnaire to better understand the needs and desires of dialysis patients as they move forward in developing and actively improving their wearable device. Qidni Labs would greatly appreciate your time in giving them your input through this survey. Click the link to go to the survey:  https://tinyurl.com/y4op5p6c

    Your feedback will help them make the change you want to see in the future of kidney and dialysis care. You can learn more about them on their website www.qidni.com.
  • TESTING Study Seeking Patients with IgA Nephropathy
    IgA nephropathy is one of the most common causes of kidney disease, especially in younger adults. The mainstay of therapy involves using blood pressure medications to lower both blood pressure and decrease proteinuria. In those wherein proteinuria cannot be lowered to less than a gram, progression to end stage kidney disease occurs over a number of years. There is information to suggest that corticosteroids (medications that suppress the immune system) may be effective at preventing kidney failure in patients with IgA nephropathy. The TESTING Study is an international study being conducted to clearly understand what benefits and risks are associated with corticosteroids in IgA nephropathy, using a corticosteroid called methylprednisolone.

    Over the next year we are looking for 50 patients over the age of 18 with IgA nephropathy to participate in this study at 6 hospitals across Canada. If you are interested in learning more about the study, please contact a research coordinator at one of the hospitals below:

    St. Paul’s Hospital/Vancouver General Hospital (Vancouver, BC): Zainab Sheriff zsheriff@providencehealth.bc.ca or 604-682-2344 x64744

    University of Calgary, Foothills Medical Center (Calgary, Alberta): Sheila Li li2@ucalgary.ca or 403-210-7431

    University of Alberta Hospital (Edmonton, Alberta): Nancy Ruholl nruholl@ualberta.ca or 780-492-3887

    Sunnybrook Health Sciences Centre (Toronto, Ontario): Tatjana Sukovic tatjana.sukovic@sunnybrook.ca or 416-480-6100 x 3247

    London Health Sciences Centre (London, Ontario): Kerri Gallo kerri.gallo@lhsc.on.ca or 519-685-8500 x52212

    Hôpital Maisonneuve Rosemont (Montréal, Quebec): Martine Comeau mcomeau1.hmr@ssss.gouv.qc.ca or 514-252-3400 x4647
  • Join the international SONG-PKD Delphi Panel!
    Are you a patient, caregiver or health professional? Join the international Standardised Outcomes in Nephrology Initiative – Polycystic Kidney Disease (SONG-PKD) Delphi panel and have your say on what outcomes should be included in research in autosomal dominant PKD.

    In Round 1, you will be asked to rate the importance of 41 outcomes. This will be followed by a second round, in which you will see a summary of the group results. Learn more.
  • What Do You Think About Exercise During Hemodialysis?
    Are you at least 18 years old and do you live in Ontario? Are you currently on hemodialysis? If so, The Ottawa Hospital Research Institute wants to know what you think about exercise during hemodialysis.

    The Ottawa Hospital Research Institute is planning an exercise program for people on hemodialysis who are cleared to exercise by their kidney doctor. It wants to hear from you about what you think about this idea so that it can plan its program with your point of view in mind.

    If you, or someone you know, is currently on hemodialysis and can spare a few minutes for a short chat (45 minutes) by phone or in person, The Ottawa Hospital Research Institute would be delighted to hear your views – whether or not you are interested in exercising during dialysis!

    In appreciation for your time, The Ottawa Hospital Research Institute can offer you a $20 gift card.  Please note that your views will be confidential and that taking part (or not) will not affect your care in any way.

    To find out more about this study, please contact Gisell Castillo by email or by phone 613-737-8899 ext. 71578.