Canadians Seeking Solutions and Innovations to Overcome Chronic Kidney Disease (Can-SOLVE CKD) is one of five successful recipients of $12.5 million of funding through the Canadian Institutes of Health Research’s Strategy for Patient-Oriented Research (SPOR). The largest single investment in kidney research in Canadian history, funds for the project must be matched by $12.5 million in grants, donations and partnerships secured by KFOC, CSN and the researchers involved in the project.
KFOC is a proud partner of the Can-SOLVE CKD initiative, which is a unique and innovative partnership of patients, researchers, heath care providers, policy makers, industry and renal agencies that will create a powerful patient-oriented research network to transform the care of people affected by kidney disease. The Can-SOLVE initiative will ensure that by 2020, every Canadian with, or at high risk for, chronic kidney disease will:
- receive the best recommended care,
- experience optimal outcomes, and
- have the opportunity to participate in studies with novel therapies, regardless of age, sex/gender, location or ethnicity.
The Kidney Foundation of Canada will continue to provide leadership to the Patient Council which was key to assisting in the development of the SPOR proposal. The Patient Council and the Indigenous Peoples’ Engagement and Research Council will provide the unique opportunity for those directly affected by kidney disease to provide ongoing feedback to researchers throughout the duration of the Can-SOLVE CKD initiative.
“The Can-SOLVE CKD initiative is taking research to a whole new level, bringing patients and caregivers to the forefront of kidney research projects,” said Kate Huffman, a kidney patient from British Columbia, also participated in the initiative’s development and is co-leading the Patient Council. “They are doing this by engaging patients in each project and getting their invaluable life experiences and feedback to help form research outcomes that are important to patients. I think this initiative is going to help change kidney health for future generations. I am very proud to be part of something that will have positive impacts to the quality of life of those living with kidney disease.”
A multitude of partners will help to make this work possible by providing the funding and in-kind support needed. Contributors include 13 universities, six provincial renal programs, eight professional associations, and nine existing research centres/groups along with a multitude of patient groups, national stakeholders, international research groups, and industry partners. The Kidney Foundation of Canada will continue to raise funds to support its $3.35 million investment as the largest single funder, outside of government, to this groundbreaking project.
The work that will be undertaken over the next five years will fall into three thematic areas:
- Identify and support people living with kidney disease who are at highest risk for poor outcomes;
- Test and define the best treatments to improve outcomes and quality of life;
- Define the best ways to deliver patient-centered care in the 21st century.